“Rare Diseases in a Changing and Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”
EURORDIS – Rare Diseases Europe will host the biennial European Conference on Rare Diseases and Orphan Products (ECRD 2026) on 3 – 4 June 2026 in Prague and online. As the largest patient-led, policy-shaping event on rare diseases in Europe, ECRD brings together people living with rare diseases, patient advocates, policymakers, clinicians, researchers, industry representatives, regulators, and Member State officials. The conference provides a unique platform to exchange knowledge, share experiences, and build partnerships to advance policies that improve the lives of people living with rare diseases. ECRD 2026 is expected to welcome over 500 participants in Prague and more than 300 online.
